I want to eat, but I don't want to leave bed to get food.
Wiki Wednesday #335 - Yume Koe / 夢声
Yume Koe is a twelve year old guy. His life was great until two years ago. A girl started to Bully him. He likes spaghetti.
Who is Koe Yume?
Art from Bank |
When I was young and silly, I ate a lot of eggs and cheese. Like, constantly. But I thought it was okay if I was drinking water with lemon or lime in it.
I've always had allergic reactions to food. They probably haven't actually gotten much worse over time. (I did have hives when I went to the ER over an allergic reaction in 2013, but that wasn't common. I haven't needed to go to the ER for allergies since though I have gotten hives extremely rarely.)
I thought that somehow the acid neutralized everything. I mean, it worked, right?!
Here's my theory. First, I haven't get diagnosed with fibromyalgia officially. However, everyone is just kind of like "yeah, that sounds like it." If I wanted the diagnosis, I would need to be tested for everything else it could remotely possibly be. I'm already on the maximum amount for disability and I can't take any medication for fibro because of my bipolar disorder. Other than being able to say I officially have it, there's no reason for me to go through that mess.
The allergic reactions weren't getting worse. My fibro was.
If I tried to explain my "allergic reaction" to most people, they'd think I was crazy. It's this burning hot, searing pain that shoots down my jaw and across my chest. I've been through painful things, and nothing compares to that horrific burning.
If I explained that to someone with fibromyalgia... They get it.
My reasoning is that I just never cared about food allergies. My body did not like this. It started telling me to care. I did not listen. It told me to care even louder. I tried to find workarounds! I tried really hard! And then the suspected ARFID started. If I ate meat, my body freaked out and I started choking. I could breathe completely fine. I could take a Beano and stop choking. Until the Beano stopped working and only coughing up the offending meat made it stop. (Note: doctors usually just say that what I'm describing sounds terrifying and they don't know what's happening. I was able to get ChatGPT to agree that ARFID is the only thing that makes sense here.)
No one could see the searing pain. But my mom could see me choking no matter what I did to try and make it stop! So that's why I'm vegan.
If it weren't for the fact that I probably have Avoidant Restrictive Food Intake Disorder, I would still be drinking lemon juice and eating omelettes. I'd probably plan eating things I liked for days I was willing to flop around in bed in pain.
But that would actually be a really bad idea. Being vegan can be tough, but it's not a crazy rare thing. There are tons of resources out there for vegans. And if you ignore the fact that being vegan is a restriction, I have no restrictions or allergies! I can happily eat anything other vegans can eat.
How Is Yume Koe's bank?
The Wiki page for Koe promises new banks in the future. However, currently there is only one CV bank. The wiki warns that the pronunciation is off. The bank is interesting! The voice is nice.
Where Can I download Koe Yume?
You can find him on his wiki page. He is cool!
No comments:
Post a Comment